Are You Living with Amyloidosis?

We are here to help patients, caregivers, family members and loved ones. Amyloidosis can be a challenging and difficult disease but it is a disease that can be treated and managed. Our group includes newly diagnosed patients as well as patients who were diagnosed more than 15 years ago.

Group members represent various types of amyloidosis including AL, hereditary ATTR and wild type ATTR.

We share what we know about these rare amyloidosis diseases, including accurate diagnoses, symptoms, treatments, side effects, clinical trials, quality of life issues and many other topics of interest to participants.

Overwhelmed by your diagnosis? Join Us.

We are your Northern California patient support resources!

  • Connect with others living with amyloidosis

  • Increase your knowledge about your disease

  • Share experiences, information and concerns

  • Learn about current treatment options and protocols and clinical trials

  • Learn about educational disease webinars, seminars, and medical articles from various sources

  • Participate in amyloidosis surveys, patient panels that enhance research, educate our healthcare professionals and increase disease awareness

  • Most meetings include medical experts from Bay Area treatment centers, researchers, pharmaceutical reps, and other guests

Amyloidosis Research Consortium

ARC is dramatically improving the lives of patients with amyloidosis and accelerating cutting-edge research through collaborative, ground-breaking initiatives.

320 Nevada St. Ste 210

Newton, MA 02460

Phone: (617) 467-5170

www.arci.org

For Patients and Caregivers, Family Members and Loved Ones

All diagnosed patients and family members are welcome to join us at our quarterly meetings. There is no charge to participate in meetings and with your permission we will add you to our distribution list to receive future meeting notices and current and relevant amyloidosis information.

Meeting Times and Locations

Meetings are held quarterly, generally on the second or third Saturday of the month, depending upon room and location availability.

~ 10:00 am to 2:00 pm ~

Refreshments are provided

Contact Facilitator for actual meeting dates

My Amyloidosis Pathfinder

Take a short survey to create a unique anonymous profile of your amyloidosis that will contribute to a cure by providing researchers with critical anonymous disease data.

Be matched with potential clinical trials.

Additional Resources